Data Epistemology and healthcare
There are some deep difficulties in blending data across healthcare functional and institutional boundaries. There are dozens of different reasons why data does not "meld" well, which as technology progresses and people move around more becomes a great hindrance.
With respect to payment processes, the U.S. government and others have imposed a very "coarse" view on an immensely complex reality. In the U.S., if you go to the hospital, your treatment will be force-fitted into one of a few hundred "diagnostic" groups, and the hospital will be compensated based on a payment level allotted to that group. All the rich detail of your experience is discarded for the sake of practicality, just as your passport photo may represent you with only a few hundred thousand pixels rather than with a portrait-quality pictures with many millions.
On the other hand, your actual diagnosis and treatment exhibits infinite particularity, and any system that is to aid in the healthcare process itself needs much more fidelity. Choices have to be made in terms of "fidelity" - e.g., although it may be possible to capture and retain in a database your every heartbeat, is there a need to do so? If we choose to capture only a very tiny subset of that data (e.g., your pulse as measured twice a day), are we depriving some data consumers of important knowledge? If we do capture great detail, is it possible that we will not associate it with you, but with some other patient? It happens.
Today, there is the general outcry that the healthcare system in the the U.S. is unnecessarily errorprone and expensive because of an inability to share data. Although one will rarely if ever associate that discussion with "epistemology," the barriers that we face are in fact our number one epistemological problem.
With respect to payment processes, the U.S. government and others have imposed a very "coarse" view on an immensely complex reality. In the U.S., if you go to the hospital, your treatment will be force-fitted into one of a few hundred "diagnostic" groups, and the hospital will be compensated based on a payment level allotted to that group. All the rich detail of your experience is discarded for the sake of practicality, just as your passport photo may represent you with only a few hundred thousand pixels rather than with a portrait-quality pictures with many millions.
On the other hand, your actual diagnosis and treatment exhibits infinite particularity, and any system that is to aid in the healthcare process itself needs much more fidelity. Choices have to be made in terms of "fidelity" - e.g., although it may be possible to capture and retain in a database your every heartbeat, is there a need to do so? If we choose to capture only a very tiny subset of that data (e.g., your pulse as measured twice a day), are we depriving some data consumers of important knowledge? If we do capture great detail, is it possible that we will not associate it with you, but with some other patient? It happens.
Today, there is the general outcry that the healthcare system in the the U.S. is unnecessarily errorprone and expensive because of an inability to share data. Although one will rarely if ever associate that discussion with "epistemology," the barriers that we face are in fact our number one epistemological problem.